Web Site ResourcesClick on the links below to find more helpful information.Resources for Patients and their Families
Caring Connections Hospice Foundation of America
http://www.hospicefoundation.org Legacies http://www.legacies.ca New Lifestyles http://www.NewLifeStyles.com Free books that list local skilled nursing facilities, Board and Care homes and Assisted Living listings Get Palliative Care http://www.getpalliativecare.org National Family Caregivers Association http://www.nfcacares.org
Physician Orders for Life-Sustaining
Treatment (POLST)
Support Services and Support Groups for Patients and Loved Ones Facing Chronic/Terminal Illness
American Cancer Society
http://www.cancer.org/docroot/ home/index.asp American Heart Association http://www.americanheart.org American Lung Association http://www.lungusa.org Multiple Sclerosis
http://www.msfacts.org Alzheimer’s Association http://www.alz.org ALS (Lou Gehrig’s Disease) http://www.alsa.org Resources for Healthcare Professionals
Academy of Hospice and Palliative Medicine
http://www.aahpm.org American Hospice Association http://www.americanhospice.org Caring Connections http://www.caringinfo.org Certificate Program for End-of-Life Care http://www.naropa.edu/ contemplativecare End of Life/Palliative Education Resource Center http://www.eperc.mcw.edu The EPEC Project (Education in Palliative and End-of-Life Care) http://www.epec.net Hospice Foundation of America
http://www.hospicefoundation.org Hospice and Palliative Nurses Association http://www.hpna.org National Hospice and Palliative Care Association http://www.nhpco.org Physician Orders for Life-Sustaining Treatment (POLST) http://www.caPOLST.org Suggested Reading
The 36 Hour Day (A Family Guide for the Care of People with Alzheimer’s/Dementia)
Nancy L. Mace and Peter V. Rabins All Kinds of Love: Experiencing Hospice Carolyn Jaffe and Carol H. Ehrlich An Ocean of Time: Alzheimer’s Tales of Hope and Forgetting Patrick Mathiasen, MD By No Means: The Choice to Forgo Life-Sustaining Food and Water Joanne Lynn (editor) Caring in Remembered Ways: The Fruit of Seeing Deeply Maggie Steincrohn Davis Choices at the End of Life: Finding Out What your Parents Want Before It’s Too Late Linda Norlander,RN, MS and Kerstin McSteen, RN, MS Dying At Home: A Family Guide for Caregiving Andrea Sankar Dying Well: The Prospect of Growth at the End of Life Ira Byock, MD Dying with Dignity: A Plea for Personal Responsibility Hans Kung and Walter Jens Facing Death and Finding Hope: A Guide for the Emotional and Spiritual Care of the Dying Christine Longaker Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying Callanan, Maggie and Kelly, Patricia The Four Stages of Hope: Using the Power of Hope to Cope With Dying Cathleen Fanslow-Brunjes, MA, RN Helping Grieving People: When Tears Are Not Enough: A Handbook for Care Providers Shep J. Jeffreys, EdD. I’m Here To Help: A Guide for Caregivers, Hospice Workers, and Volunteers Catherine Ray On Death and Dying Elisabeth Kūbler-Ross, MD Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill Cappy Capossela, Sheila Warnock and Sukie Miller |
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